First trying to get the boys registered for school and Ashlyn ready to start 5th grade and Kaeden back to Mother's Day out 2 days a week. Finally got the boys all registered and ready for school had their IEP meetings, arranged special transportation, borrowed a medical stroller for Pasha (our insurance still hasn't approved his wheel chair) and 5 tons of school supplies purchased.
Well the last couple of weeks Pasha has been eating less and less, he's never eaten well and is underweight already. On Friday he pretty much quit eating and drinking so Saturday afternoon I drove him to Texas Children's ER. He had a slight fever and had lost almost 2 lbs since coming home in May so we were admitted. After having a CT, several X-rays, bladder function tests and lots of lab work done they decided he has a UTI. We were released Tuesday evening and go back next week for his big Spina Bifida appt and at that appt we will discuss a feeding tube and when to have it done for him. I have been fighting that since he got home trying to avoid it but I can't put it off any longer:( so next week or so he will probably have a g tube put in.
Good news Callen and Pasha went to school today for the first time and both had a good day. They both are saying they want to go back tomorrow so I'm really hoping for the same good news tomorrow when I pick them up!